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BackgroundCongenital heart disease (CHD) remains a leading global birth defect with high prevalence, yet advances in diagnosis and treatment have raised survival rates to 90%–95%. This epidemiological shift transforms CHD into a chronic condition demanding long-term post-discharge home management. Although mobile health (mHealth) holds promise for supporting such care, current tools suffer from low adherence, insufficient age-appropriateness, and a lack of emotional and social support, and most evaluations neglect the integrated perspectives of primary caregivers, clinicians, and technical developers.ObjectiveThis study aims to explore and synthesize the needs for and perspectives regarding an idealized mHealth system for post-discharge CHD home care from the perspectives of primary caregivers (PC), healthcare professionals (HP), and technical consultants (TC).MethodsA qualitative descriptive design was employed, using semi-structured interviews with seven PC, six HP, and three TC. Data were analyzed using Braun and Clarke's Reflexive Thematic Analysis (RTA) framework.ResultsSix overarching themes were identified: (1) tailored to individual, (2) easy to use, (3) media in convergence, (4) at the ready, (5) one clear voice and (6) emotional support on demand.ConclusionsThese findings provide a stakeholder-informed framework to guide future development of user-centered, clinically relevant, and technically robust mHealth interventions.

BackgroundHeart failure profoundly affects women's physical, emotional, and social well-being, often generating fear, uncertainty, and vulnerability that challenge adaptation and self-care. This study explored how women living with heart failure construct meaning and develop inner strength through illness awareness — defined as understanding the nature, severity, progression, and self-management implications of heart failure. Many women initially showed limited recognition of the seriousness and long-term trajectory of the condition, sometimes perceiving it as less threatening than other diagnoses (e.g., oncological conditions) and occasionally discontinuing treatment during periods of symptomatic improvement. The study also examined how awareness interacts with relationships and everyday adaptation.MethodsA qualitative design was applied using reflexive thematic analysis based on in-depth, semi-structured interviews with eleven women recruited from a cardiology research hospital in Northern Italy. Data were analyzed through a six-phase analytical framework to identify patterns of meaning and transformation.ResultsFour interconnected themes described a developmental process of learning and adaptation: confronting vulnerability, reconnecting through others and faith, adapting daily life, and developing illness awareness and self-care. Participants revealed a gradual shift from emotional distress to reflective resilience, with awareness and self-reflection acting as catalysts for personal growth and empowerment. Limited illness awareness — particularly regarding disease severity, chronic progression, and the need for continuous treatment — conversely hindered adaptation and promoted passive coping.ConclusionsDeveloping illness awareness emerged as both an educational and therapeutic that fosters resilience, self-reflection, and active engagement in self-care. Integrating structured educational and psychosocial interventions into heart failure management may strengthen women's inner resources and enhance their capacity to live meaningfully with chronic illness.

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